by Amanda Trumpower | Jan 31, 2019 | From Hospital to Home
We got great news today! Jayce will not need surgery. He doesn’t have the bad liver disease. The biopsy indicated his liver is not normal, but definitely does not need surgery. In fact, the nurse practitioner we (finally) spoke with this evening thinks it’s...
by Amanda Trumpower | Jan 31, 2019 | From Hospital to Home
This is a brief update to say there is no update. Jayce had his biopsy today. It went well. He was in a lot of pain afterwards until they adjusted his meds. I’m going to not dwell on that. The results should be in the doctors’ hands tomorrow. We were told they would...
by Amanda Trumpower | Jan 30, 2019 | From Hospital to Home
The results of Jacey’s blood panel are here. It yielded new information and raised a few questions. First, he is a carrier for cystic fibrosis. (That would be my side. Sorry, bud.) He doesn’t have it himself. Yay! This is relevant because premature infants who...
by Amanda Trumpower | Jan 29, 2019 | From Hospital to Home
Did you know babies sometimes sleep through the night?!?! As of this morning, we do!! Last night was our first good night since bringing Justine home! Except for the time it took to finish her bottle, she slept through the night! THIS HAPPENS? It’s been great having...
by Amanda Trumpower | Jan 28, 2019 | From Hospital to Home
This is a picture of Josiah looking at Justine as she sits in her swing. Let me tell you about it. The days have been hard in the Trumpower house. On Justine’s first night here, she slept in the Pack’n’Play in our room. Rotating through her care schedule every three...
