by Amanda Trumpower | Jan 11, 2019 | From Hospital to Home
Well, she did it again. Justine had another breathing incident at 6 am. THE DAY SHE WAS SUPPOSED TO COME HOME. The clock is reset for another five-day period. Earliest homecoming day is now Wednesday. Frowny faces all around. Jayce is chugging along, practicing his...
by Amanda Trumpower | Jan 10, 2019 | From Hospital to Home
Justine had a breathing incident shortly after the doctors gave her the green light to come home tomorrow. Hospital policy says patients need to go five days without having an incident before release. Today is Day 0, so provided she doesn’t do this again, earliest...
by Amanda Trumpower | Jan 9, 2019 | From Hospital to Home
This will be quick. I have a lot to do… When I started drafting this update several days ago, the big news was that Justine graduated out of her isolette box! She can regulate her own body temperature, so the nurses put her in a normal crib. Like, a totally...
by Amanda Trumpower | Jan 6, 2019 | From Hospital to Home
I am not a fan of today’s news. We received a phone call yesterday evening from the nurse practitioner. Jayce has a urinary tract infection. To treat it quickly with antibiotics, they had to put his IV back in. He should immediately feel better once the...
by Amanda Trumpower | Jan 5, 2019 | From Hospital to Home
Jayce had a liver ultrasound yesterday. We have more information than before. We need additional time and tests to see what the future holds. The good news: Nothing they saw indicated a need for immediate surgery. The liver was the correct size and appeared to be...
by Amanda Trumpower | Jan 4, 2019 | From Hospital to Home
Today we got transferred to Nationwide Children’s NICU. Earlier this afternoon, the doctors informed me they want to do another ultrasound on Jayce’s liver. His skin is still too red. They say it’s because of high levels of bilirubin, a substance made during the...
